Evenimente si campanii

Sesiune ASPIIR in cadrul Conferintei Nationale SNMF – „Ziua medicului de familie”, 15-18 mai 2019, Tg. Mureş .

 

In urma cu vreo 3 ani, ne adresam pentru prima oara catre SNMF, in dorinta de a atrage si a integra medicii de familie in managementul Bolilor Inflamatorii Intestinale, in echipele multidisciplinare dedicate BII, in scopul reducerii timpului de diagnosticare a BII, de la momentul prezentarii pacientului in cabinetul medicului de familie si pana la diagnosticarea intr-un centru specializat BII. Mai mult>>

IBD DAY 2019 in Cluj Napoca/ 9 mai 2019

Cu cateva zile in avans fata de Ziua Internationala a Bolilor Inflamatorii Intestinale ( 19 mai), ASPIIR a reunit in Cluj Napoca, vocile pacientilor cu BII, in mesajul comun „ Making the invisible visible”- sloganul campaniei internationale IBD Day 2019. Evenimentul a avut loc in foaierul Cazinoului din Parcul Central Cluj Napoca, cu invitati specialisti gastroenterologi: prof.dr. M.Tantau, conf.dr. A.Tantau, dr. R.Zaharie si cu participanti pacienti cu BII si stomizati din Cluj Napoca si din alte orase din zona. Mai mult>>

28th MARCH 2019 – The Conference of Family Medicine  – „The delicate balance between science, art and communication”, 15th edition

The Bucharest-Ilfov Family Physicians Association (AMFB) organized one of the most important annual scientific events dedicated to family doctors between March 28th and 30th 2019. The ASPIIR Association participated  together with Gastro Grup in SNMF and presented the session: „GP in IBD – Patient with diarrhea between family doctor and specialist „. Details >>

5th of November – Iași

We found Iaşi in a flower bloom, an autumn garden full of chrysanthemums, and a team of physicians in the St. Spyridon County Emergency Clinical Hospital who invited patients to the first ASPIIR meeting. Beeing at the end of a project that was materialized throughout the year in meetings and discussions with psychologists (UMF Iaşi university proffesors), patients with IBD or ostomates responded positively to ASPIIR initiatives. Detalis >>

27th – 29th of September – National Symposium of Inflammatory Bowel Diseases, Crowne Plaza, Bucharest, 10th edition

Each passing year, patients with BII and ASPIIR become more and more constant partners of the Romanian Club for Crohn’s Disease and Ulcerative Colitis (RCCC), as part of the National Symposium on Chronic Digestive Disease, organized by RCCC every year. This year, the symposium celebrated 10 years of existence and every passing year, the interest in this scientific event increased, as evidenced by a large number of participants and the quality of the papers presented. Details>>

The role of General Practitioner in IBD & Notions of stoma care – Mamaia, August  30th 2018

ASPIIR has been continuing to develop the fruitful collaboration started two years ago with family doctors and National Society of GPs and that, through the events organized with GastRO Grup SNMF, we contribute to the growth the awareness of identification of IBD symptoms in the family doctor’s office, reducing the time to target the patient to the specialist, or bringing in the attention the patients with stoma and their needs and care. Detalis>>

General Assembly of the European Federation of Crohn’s & Colitis  Associations,  25 – 26 May 2018 Bucharest, Hilton Garden Inn Old Town

We are glad to inform you that this year May brought us a different celebration of the International Day of Fighting  against Inflammatory Bowel Diseases (May 19 – IBD Day). We were honored having  for the first time ever the all European organizations of patients with intestinal inflammatory diseases in Bucharest in an event hosted by ASPIIR. Details>>

11st of May, Timisoara

Press Conference on the Multidisciplinary Approach to Inflammatory Bowel Diseases

 

The May 11th has  brought us in front of gastroenterology specialists in a discussion on the need for a multidisciplinary approach for IBD patients, the need for and the purpose of dedicated BII centers to provide integrated patient services and to contribute to improving the quality of the IBD patients lives. Prof. Mircea Diculescu / Bucharest, Prof.Dr. Dan Dumitrascu / Cluj Napoca, Conf.Dr. Adrian Goldis / Timisoara, surgeons, the manager and the medical director of Timisoara County Hospital, warned about the increase in the number of cases diagnosed with IBD and showed the impact these illnesses have on the social, family life of the affected persons. The event was attended by ASPIIR, patients, journalists.

Center dedicated to IBD patients  at the „St. Apostle Andrew” County Emergency Hospital in Constanta

May 8, 2018 – St. Apostle Andrew Emergency Clinical Hospital Constanta hosted the launching event of the third center dedicated to patients with intestinal inflammatory diseases in Romania: after those opened last year in Bucharest and Cluj-Napoca.  Details>>

„For those with a different existence”

Workshop for stoma care

National Conference on Family Medicine – March 29, 2018

For the person who became an ostomate, the help of the family doctor is often essential. Once back home after the hospitalization , he is going to the family doctor for all the medical needs.

Details >>

Warsaw Biologics & Biosimilars Patient Access & Advocacy Workshop/ 15 – 16 September 2017

Last month we have been invited by GAfPA – Global Alliance for Patients Access ( USA) to the advocacy workshop regarding the methods that we, the organizations, patients, should address the increased opportunities for advocacy alongside decision-makers, in order to improve the quality of life for patients .The GAfPA and the European Federation of Crohn’s and Colitis Association ( EFCCA) came together  a few times and held  workshops for Biologics and Biosimilars Patient Access, for Patients Advocacy and best practices .

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National Symposium of chronic inflammatory bowel diseases,  28 – 30 september, Bucuresti.

Every year, in September, takes place the National Symposium of chronic inflammatory bowel diseases, organized by the Romanian Club for Crohn’s  and Ulcerative Colitis (http://www.rccc.ro)  that gathers gastroenterologists from all over the country. .

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IBD Day 2017
Recognition and implementation of criteria for centers dedicated to patients with inflammatory bowel disease

Like every year in May, we marked the International Day of Fighting against Inflammatory Bowel Diseases.

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Stakeholder Workshop on Biosimilar Medicinal Products – 5 May, Bruxelles

The European Commission (Directorate-General for Internal Market, Industry, Entrepreneurship and SMEs) invited us to itsStakeholder Workshop on Biosimilar Medicinal Products which took place on Friday, 5 May 2017 in Brussels at Centre de Conférences Albert Borschette, Rue Froissart 36, 1040 Brussels.

Details>>

“The Heritage of Charles IV” Project
01 – 11 december 2016, Prague

With the end of 2016, a new Erasmus + project came, prepared since last year, consisting of a collaboration between ASPIIR, Duha Tangram Association from Prague and an organization from Malta.

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Patient representatives attended to an open debate on patient safety issues and right to information at the European Parliament, Bruxelles, 15 November 2016.

The Global Alliance for Patient Access (GAfPA),  European Federation of Crohn’s & Ulcerative Colitis Associations (EFCCA) and representatives from several immunomodulated disease groups gathered in the European Parliament for an open debate with Members of the European Parliament about patient safety and patient rights especially as it pertains to biosimilars and biologic treatments.

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The “ME & IBD” Project
September 29 – 30, 2016/ The 8th RCCC National Symposium on Inflammatory Bowel Diseases

As it happens on a yearly basis, ASPIIR joined the gastroenterologists who participated at the National Symposium on Inflammatory Bowel Diseases of The Romanian Crohn’s and Colitis Club by organizing “ME & IBD” project between 29 – 30 September, at Crowne Plaza Bucharest.

Details>>

20 Km Bruxelles maraton – 29th of May 2016

This year as well we participated in the “20 km de Bruxelles” maraton, joining/completing the EFCCA team!

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General Assembly European Federation of Crohn &Colitis Associations

GA EFCCA gathered in Bruxelles,  27 – 28 May, all EFCCA members.

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ECCO-EFCCA Patient Guidelines Press Conference, at the ECCO’16 Congress in Amsterdam , March 2016

As you already know, EFCCA worked with the European Crohn´s and Colitis Organisation (ECCO) on an exciting project in order to make the ECCO Guidelines for people with IBD more user friendly.

Details >>

“Improving quality of life for people with IBD” – Parliament Palace

The event “Improving quality of life for people with IBD”, celebrating the IBD Day 2016, took place on 19th of May, in partnership with the Health Commission of Deputies Chamber from the Parliament .

Details >>

World IBD Day 2016
We’ve been purple on 19th of May!

The Parliament Palace and a few fountains in the square in front of the building have been illuminated in purple and the projection we made on the Parliament sent the message

” Together against IBD – www.aspiir.ro “.

Details >>

Advocacy workshop on patient safety
took place from the 4-6 February 2016 in Barcelona.

The workshop was co-organised by EFCCA with GAfPA, the International Network of Physicians & Advocates for Patient Access, in order to create greater awareness amongst patient communities regarding the issues impacting access to biologic and biosimilar treatments.

Details >>

Close to those who experience life differently

From 14th to 17th October 2015, the Palace of the Romanian Parliament hosted the National Conference on Surgery, in parallel with the National Congress on Coloproctology. The theme of the National Congress on Coloproctology was: colon cancer and intestinal stoma.

Details>>

“MOUNTAIN OF HOPE” – Cheile Grădiştei, September 27th, 2015

Romanian Association of People with Inflammatory Bowel Diseases (ASPIIR) and Romanian Club for Crohn’s Disease & Ulcerative Colitis (RCCC) organized a mountainous expedition on the following track: Fundata – Moieciu de Sus – Colţul Ziliştea – Culmea Lungă – Dealul Cremenii – Satul Cheia – Pârtie Biathlon Fundata, aiming at drawing attention upon inflamatory bowel diseases (IBD) and their impact on patients’ lives.

Details>>

ILCO Austria celebration – 40 years of activity/ 12 – 13 May , Vienna

It is increasingly known the importance and necessity of patient organizations, of the support groups for people with chronic illnesses or disabilities.

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20 km Bruxelles Marathon, 31st of May 2015

In May we were also very busy organising the participation at the 20 km Brussels marathon http://www.20kmdebruxelles.be/en/ in order to raise awareness about IBD on the occasion of World IBD Day.

Details >>

General Assembly of EFCCA, 29 – 30 May 2015 / Bruxelles

EFCCA 25th Annual General Meeting took place this year on 29 -30 May in Brussels with over 70 delegates attending.  EFCCA welcomed two new associations to the EFCCA family, namely ASPIIR from Romania and HELLESC, Greece. Some very important issues were discussed:

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Ljubljana, SLOVENIA- International Day of fighting against Inflammatory Bowel Diseases- may 2015

Between 15th and 17th may 2015, ASPIIR took part in the campaign which labeled the day of 19th may International Day of struggle against Inflammatory Bowel Disease, developed at Ljubljana by the partner association, KVCB Slovenia.

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World IBD Day 2015

This year more than 40 countries across the globe are joining together in a unified effort to raise awareness about Crohn’s disease and ulcerative colitis in honor of World IBD Day, held every year on May 19.

Details >>

Awareness raising campaign

ASPIIR is carrying out a campaign to increase awareness about inflammatory bowel disease and its risks and implications, which will run throughout
2015. It´s planned in various towns of Romania and in March we organized such an event in Calarasi, a town in the South-Eastern part of Romania, where we also showed our art exhibition “Perspectives: Art, Inflammation and me” (as previously reported in the EFCCA Magazine).

Details >>

„Happy Day for You”, January 2015/ Prague

Prague, 15th-25th January 2015/”Happy Day for you”- a project in partnership with Duha Tangram, an association from Prague, funded by The European Commission supported by the Erasmus+ program./2014-2020

Teenagers suffering  from an inflammatory bowel disease tend to become prisoners of their home, due to managing with critical periods which strongly reflect on their personal live, social live, making them loose confidence and self-respect. Inflammatory bowel disease’s intense manifestations lead to refusing to socialize and self-isolation; this is why a big part of ASPIIR’s initiatives take into account this aspect and are focused on social inclusion, on encouraging communication, on confidence stimulation and on overcoming the boundaries generated by a chronic disease or by an disability.

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iBD-Art Perspectives, September 2014

ASPIIR Association Initiative, “IBD Art Perspectives” put into a new dimension to the current understanding of inflammatory bowel diseases and their impact on patients and society and resulted in an exhibition with fifteen artworks: fifteen stories of patients who face an inflammatory bowel disease – fifteen artists – exhibition presented at the Crowne Plaza Bucharest

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IBD Day – 19 may 2014

ASPIIR celebrated IBD Day 2014 through two events:

  • at the European level –  by participating in EFCCA group (European Federation of Crohn’s and Ulcerative Colitis Associations)  to the Bruxelles Marathon from 18th of May 2014
  • at national level – by organizing an informational campaign “ Choose to be the winner!”, 19th  – 21st of May 2015 in the Unirea Cenral Park from Bucharesti

Details >>

EFFCA 2014 

In April 2014,  ASPIIR participated to AG  European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) Austria and  applied to became member of EFCCA.
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Non-Formal Medieval Festival

ASPIIR implemented “Non-Formal Medieval Festival” in the medieval Transylvanian town of legendary Dracula – Sighisoara between 1st – 10 th of October 2013 and gathered 25 youngsters from Spain, Croatia, Czech Republic, Romania and Italy; youngsters with IBD or stoma or other sort of disability and also some non-disabled youngsters.  Details >>

D.O.L.L.S.

“Developing Our Lifelong Learning Skills” D.O.L.L.S project took place in Calarasi, a small town on the branch of Danube. The focus of the project was the utilization of art/ creation ( building giant puppets) as a smooth and easy way to foster the young people with IBD and ostomates to give up to the inhibitions and complexes and get involved in a social life and on the other hand, to foster the non-disabled youngsters to accept them , have tolerance and help their social inclusion as well. details >>

Arhiva 2012

November 2012- ASPIIR association participated at the Appetiser seminar, organized by The National Agency of Community Projects in the area of Educational Development and Professional Forming from Athens, Greece, funded by the European Commission , seminar regarded to the insertion of teenagers into international work.
Details >>